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09-22-2006, 06:00 PM
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#1
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Senior Member
Join Date: Dec 2005
Posts: 274
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Prayers coming your way
Hi Lu Ann,
Prayers and all good wishes coming to you. Stay as positive as you can. You will do fine.
Hugs and Blessings,
Liz J.
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09-22-2006, 06:09 PM
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#2
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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I hope you start the xeloda/tykerb soon. I am having great results with it now, if I can tolerate the side effects of diarrhea. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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09-22-2006, 06:35 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Lu Ann...
Done!!!! Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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09-22-2006, 08:07 PM
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#4
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Senior Member
Join Date: Aug 2006
Posts: 492
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Lu ann, I hope your doc is just being overzealous. Good thoughts coming your way!
And what a cute calico. I just love calico girls.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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09-22-2006, 08:19 PM
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#5
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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LuAnn, prayers said.I hope there's not too many trials ahead. Someone on this site beautifully said fear and faith can't occupy the same space so try the faith. I know it's harder when your're the one that has to implement these thoughts. You can do it. Best of luck. BB
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09-22-2006, 08:32 PM
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#6
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Liz, Rhonda, Girls, Thanks for all the kind thoughts and prayers.
Sandy, I didn't have any diarhea with the xeloda alone, so hopefully I won't have it with the combo. Glad you are doing well with this combo. Keep it up!
Bev, I know it can be hard, but I just keep reminding myself that Faith comes from God and fear comes from the evil one.
Marjorie, Thanks for the compliment on my sweet kitty, Millie. She is an ornery little thing, only likes me. My oldest daughter rescued her from the wild 8 years ago so she is still a little skidish. She hisses and spits at her shadow if it gets in her way.
I forget that some of you get pictures of us on the message boards. I don't, unless I go to the membership site.
I don't have my appts. yet, but will let all of you know when I am going.
Love and Blessings to You All
Love, Lu Ann
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09-22-2006, 10:25 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Lu ann,
You are in my prayers.
Hugs,
Karen
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09-23-2006, 03:38 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Lu ann;
I am sorry to hear your onc found that node and regret to tell you that that is how my tumor in my supraclavicular node was found. My onc had a biopsy done of it and I see your's isn't so perhaps it is not the same thing. Mine was blasted with radiation and chemo and appears now to be gone. I was told that if you must have this spread anywhere....that is the best place. Take care Lu ann and I hope it's all about nothing.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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