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Old 09-12-2006, 01:51 PM   #1
Brian
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Brian

Just to let you know, my wife, Lisa, took six of the U of Washington vaccine treatments in late 2004 and finished in January, 2005. Although she initially had a strong immune response from the vaccine she suffered a recurrance of cancer on old scar tissue from a previous tumor in her lung in January, 2005. We sent slides of the tumor samples to U of Washington which revealed that Lisa's immune system was actually attacking the tumors which everyone felt was good.
Shortly after Lisa went on chemo with Gemzar and Herceptin. She then presented with a small brain tumor in April, 2005 which was Gamma Knifed, and the cancer again appeared in a couple of areas of her liver that had been previously subject to RFA. These areas were RFA'd again and she went on 6 months of Xeloda and Herceptin.
She has been NED since the last RFA treatment.
She has sent subsequent blood samples to U of Washington, but they showed no immune response remaining.
We are looking for a new vaccine trial as we speak.

Lisa and Brian
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Old 09-12-2006, 10:11 PM   #2
michele u
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Brian, They are starting the new vaccine trial in Seattle this october. It is a viral based vaccine. Our bodies recognize and fight off viruses and not protein very well. they will put the vaccine in a virus this time. It will be in 11 different centers across the country. Call Patty Fintak and ask about it
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Old 09-12-2006, 10:17 PM   #3
DonnaNY
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Could you please tell me how to contact Patty Fintak? Thank You!
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Old 09-13-2006, 06:53 AM   #4
Joe
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To access clinical trial information, just go to our clinical trials page:

http://www.her2support.org/a/newher2.htm

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Old 09-13-2006, 08:25 AM   #5
Cynthia
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Hi Michele. I am glad to hear that you are still well. Is this trial currently discussed as one of the U of W trials on the Clinical Trial page? A number of trials are listed there, but I wasn't sure which one you are referring to. Also, do you know if this trial accepts patients who have never had mets?

FYI, I completed the Walter Reed vaccine trial in 2004, and so far so good.

Cynthia

Dx 9/03 at 43 years; 4 nodes +; Her2+++; Er/Pr+; CAF x 6; rads; bi-lateral mastectomy; Walter Reed vaccine trial; ovaries removed; Arimidex; received one year of "late" Herceptin.
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Old 09-13-2006, 10:13 AM   #6
Kim in CA
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Christine,

I did the same vaccine trial as Lolly and Michelle. My last shot was in December of 2004. I have been NED in my body, but did have a single brain lesion last summer that was treated with Gamma Knife. My most recent brain MRI (last week) still shows everything to be normal. Thinking about other possible vaccine trials to try next.

Kim in CA
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Old 09-13-2006, 09:11 PM   #7
mamacze
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Hi Christine,
I did the same vaccine as Lolly, Michele, and Kim from Calif; I have been NED since Nove of 2004. I think I will contact Patty to see if I can participate in the viral one; I think a viral vector makes alot of sense.
Love Kim from CT
ps beautiful picture of you!
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