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Old 09-09-2006, 05:45 PM   #1
kareneg
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Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
Dear Lori,

Keep up the good work! I hope every ct scan is an improvement. Best of luck to you!
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Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 09-09-2006, 07:30 PM   #2
Vanessa
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Location: Houston, Texas
Posts: 624
I am hoping and praying for your continued success. Keep up the good work!
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Old 09-11-2006, 05:21 AM   #3
Shell
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Join Date: Sep 2005
Location: Philadelphia
Posts: 301
Lori-


Thanks for keeping us posted - I am currenly on xeloda/tykerb, but am always looking ahead if I need something else. I wish you continued success with it...

Regards,
Shell
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Old 10-08-2006, 10:09 AM   #4
Lori S
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Join Date: Jan 2006
Location: Baldwin, Maryland
Posts: 15
I received the results from my CT scan this past Tuesday 10/3. The scan is after completing 6 cycles of herceptin and pertuzumab given every three weeks. This scan was very disappointing as no further reduction was noted. There was very slight progression (3mm) in one of the larger masses measuring about 4.6 cm.

I will continue on this treatment and we will review again in 6 weeks after my next scan.

I am very discouraged and am starting to lose hope in this battle.

Last edited by Lori S; 10-09-2006 at 07:22 PM.. Reason: correcting # for progression
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Old 10-08-2006, 05:59 PM   #5
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Lori,

I know it's easier said than done but don't ever loose hope in this battle. The results are not what you had hoped but there was only a very slight progression. And, remember you had a significant reduction last time. Perhaps, you have reached a plateau. Hpefully, in six weeks when your CT is repeated the results will show some additional reduction. Keep us posted!
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-08-2006, 07:37 PM   #6
kareneg
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Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
Lori,

Please don't give up hope I am in a simular position as you are.I just had my catscan and it showed 25% increase in my liver mets. So I had to stop the Tykerb clinical trial. So we can't give in to this horrible beast I will go to my doctor on tuesday and see what I have left for treatment options. Please know you have all my prayers to help you through this. Please keep us posted on how you are doing.
__________________
Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 10-08-2006, 08:43 PM   #7
Bev
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Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
Hi Lori, Haven't been there yet, but .3mm is small. My MRI was off by 1.5 cm so this may not mean lot. If the next scan shows things bigger then I'd be thinking about plan B. Hoping all improves. Keep us posted as it is so helpful to know what works. BB
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