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Old 08-24-2006, 12:36 AM   #16
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
This sure is a great question. I went on disability retirement in July 2005 and moved to Georgia to live with my daughter and her family (son-in-law and grandson). As for support -- my greatest support is from this board. Here you can say anything you want, either good or bad, and someone will understand or have been at that place. Also this board offers a wealth of important information and offers great support. I'm disappointed in my daughter as she really is not supportive. She did take me to all my chemo sessions but now I take myself to radiation and my Herceptn infusions. She never wants to talk about my condition and what it means. I believe that she is still in denial. I have raised my children on my own since they were very young and always had to be strong and positive. I have no husband or boyfriend. My son-in-law talks to me alot and I believe he relays the information to my daughter. I have another daughter who lives in Chicago and she calls every week and we talk. My sisters and brothers call about once a week to check on me. My friends call but not as often and the friends I've made since moving here are a great support system for me. My grandson is the light of my life -- he gives me a reason to live. When I need a hug he is more than happy to oblige. He just turned 6 and I hope I live to see him grow up. This is a very hard battle to fight and sometimes I don't know if I'll be able to make it over the next hill. Then I think about my grandson and race over the next hill. The hardest part is that everyone keeps saying "Kate you're so strong and positive you'll beat this." Sometimes I just want to scream back and say no I'm not strong I'm scared to death.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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