Going off herceptin,scared to death
I had a call from the Dr. today. I have been on herceptin alone since jan 06. My ejection fraction dropped 15% on my last echo. I was supposed to continue herceptin until sept but my onc wants to stop now.This was our agreement when she continued the herceptin I could continue for the year as long as my echos were good but if they dropped I would stop.Now I'm feeling a little scared. Herceptin has been like a safety net for me and now my safety net is gone.
Has there been any info about if herceptin affects the heart muscle if it can be used safely for recurrance?
I have read about sometimes people taking a break and going back on if they need to. I just feel like if I have a recurrance there are no options being er/pr-.
I was just getting used to life back in the world and not dwelling on cancer every moment now I am slipping back into a world of fear and I dont want to let it take over again. As many of you I worked very hard to get thru it all.
Any advice,suggestions,comments ect are appreciated Thank you,
Alice
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