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regarding Herceptin side effects
I read the post where some of you are experiencing some side effects since on Herceptin.
I was on Herceptin since 1999 (weekly) and was taken off of it last July when I started on Abraxane. The last 1 year to 1 1/2 while on Herceptin I started experiencing some very bad leg and hands cramps. I have had muscle cramps before but never this severe. I reported this to my onc. at the time who had not heard anyone complain about the same side effect. I thought it might be something else going on. I had such a severe cramp one day that I feel that I had some permanent damage to my muscle/tendent (?)
Upon going off of the Herceptin my muscle cramps stopped and I did not have until now again. I started up again (on a new chemo regimen now so back on Herceptin) I am on Taxol/Carboplatin/Herceptin.. I just took my third dose of the combo with this week taking Herceptin alone. I am again starting to experience muscle cramps again which is making me very nervous.
I am very happy to be back on it but also very concerned.
Just wanted to know if anyone had similar and what you do if so.
Thanks
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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