Question about hospice

[hope]

Hi everyone,

I'm doing slighly better with the in home oxygen and now I am on a one week break from Xeloda. Still getting weekly Herceptin. Next cycle I will take 1,500mg a day (up from 1000mg/day). My onc and I are trying to find a tolerable dose strong enough to work on lung mets. No real major side effects yet I just hope that it is working on my progressing lung mets.

I met with the onc. last week and suggested that I look into hospice. I had always believed that hospice ment a place to go when your about to die and both me and my onc. have an understanding that I'm going to fight to the end. I was skeptical at first but then told my onc that I would agree to have a nurse visit just for information. I learned a lot from this visit and basically they would be sending a nurse once or twice a week to check on me. They also do a lot of more things too like order perscriptions and can get integrative medicine specialist like for aromatherapy, accupuncture, and massage to come to my house. When I do go out for medical appointments or for anything I am still wheelchair bound from severe fatigue and shortness of breath but that is relived with oxygen but I do try to walk a little around the house each day.

I was just wondering what your opinions are on hospice and has anyone had experience with this? Thanks, Hope