Here's a big ? for those already off Herceptin--what did you notice ?brain improved?

[Lani]

Are you still on tamoxifen or AIs? are you newly postmenopausal (within past 2-3 years) Were you forgetful, having difficulty finding words, finding your lists of things you didn't want to forget, etc while on Herceptin--any improvement once finished? How long after chemo did you start Herceptin (ie how many of your symptoms were likely due to the chemo and not the Herceptin) Also those who had to stop herceptin due to problems with MUGAs--what symptoms improved after the herceptin was stopped?

Did your dry nose, stomach aching, shortness of breath, breaking nails, rib or hip pains, dry eyes, diarrhea or other symptoms experienced while on Herceptin improve?

Now that many are hitting their one year mark perhaps they can advise others what may be in store?

This has in reality been one big experiment (adjuvant Herceptin) and noone has the answers. The drug companies have little motivation to look into this--they are even slow at doing their post-marketing surveillance ie, looking into what problems people are having while ON herceptin and reporting it.

I am sure many are curious. Well???????????