|
To Marily -regarding cramps while on Herceptin
Wow - this is the first time I ever hear anyone complaining about muscle cramps while on Herceptin. I thought it was only me. I was even beginning to think I was contracted a more severe illness. All of my doctors said they did not think related to the Herceptin. All my blood level were great so knew it was not that I was low in some area.
I was on Herceptin for 6 years with no complications what so ever until the last 1 1/2 I started developing severe leg/feet/hand cramps. And I mean severe.
I could not even flex my leg and was becoming afraid to drive since you have to extend your leg.
They took me off of Herceptin last July when I started taking Abraxane and have not experienced those cramps again. So I knew at this time it had to have some bearing.
I am sorry that it is happening to others but should be reported to our doctors so can be documented.
Take care and I hope all goes well with you
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
|
Threaded Mode