New ? I have been on Herceptin 5 years weekly with a miss only when I got CHF

[Marily]

My question... is there someone out there on Herceptin a long time with NED.. and are you having side effects... I had CHF went from ejection fx of 75 down to 23.. so watch that closely you CAN have problems after years on Herceptin... now for past year have been having increasing muscle cramps that have become more and more severe all over body ... last dose Herceptin 4 weeks ago put me out 1 1/2 weeks with cramping and spasms in hand arms legs upper and lower back and sides.. ? I am looking at it this way... if it can get my heart muscle why can it not get my other muscles? Does anyone relate? I am on doses quinine 260mg bid, Soma 350 bid, tums tabs 2 daily, Calcium Citracal 2 daily with 1/2 calcium from arbonne, A ,
Super B, E, C , Magnesium 250 bid, KCL 20 mg 1/2 tab daily blood work taken througout episode was ok? Have gone off Herceptin but not off other meds.Afraid to be off .... Afraid to be on......Please help thanks Marily