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concern
Hi
I very much appreciate your efforts to encourage me to get an MRI because I know your concern is genuine and based on real experience. Recent info has been posted at this site showing that oncs may be starting to realize that with HER2's in particular the cancer may go to the brain, and it takes too long to simply wait for symptoms.
The vast majority of the time vertigo is just vertigo. So where does that leave HER2's who are early stage, "over 2 years out and too safe" to even justify Herceptin?
If I am in denial, I really don't think I am, and I am considering getting an MRI of the brain. My previous post just tells my own experience and understanding that there are really no meaningful guidelines for early stage bc and especially for those like me, who did not get the benefit of either the newer chemos or dose-dense or even traztuzumab (although traztuzumab likely wouldn't help a lot to avoid brain mets). I have one of the best internists on earth watching over me, and yet the "state of the art" leaves both of us trying to manage me with simple manual in-office tests, occasional markers, and intuition.
Even just speaking in terms of investment, considering just how much time, money and effort has already been spent on me to deal with cancer in the first place, a brain MRI may make good sense. But then are we saying that there should be a recognized guideline that all HER2+++'s, with or without symptoms, NED or not, should have an MRI every year, as someone posted above?
Again, thank you for your thoughtfulness.
AlaskaAngel
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