??Aches and pains while on herceptin alone

Well ladies all this is very consoling.
Not that I'm glad you are having pains and aches or anything just gald I'm not the only one and that maybe it is the Herceptin.

I too have the muscle pain and the joint pain. The joint pain seems to improve if I keep up a regular level of exercise but I have to be careful what exercise.
Did some very gentle Yoga exercises on Sunday and the "bad" shoulder was really acting up on Monday


I started Herceptin with Taxol in March 2004. Taxol finished in July 2004, Herceptin paused for two months while I had radiotherapy.
Was put on three-weekly Herceptin regime after that and have managed to persuade them to keep me on since. I am tolerating it well apart from the above-mentioned aches and pains.

Decision time will be here again in March.

My instinct is to continue, if I can persuade them, as I am the equivalent of Stage III Grade III with all the nodes including post sternum implicated.

At least continue until there is more evidence from the trials as to what the optimum length of time is to stay on Herceptin.

Anyone any thoughts on this? Or is there a more appropriate place on the boards to post my query?
I'm a bit lost since the upgrade.


I haven't been around for a while - trying to get a life, as they say, so hello again to anyone who may remember me although I am a very infrequent poster.