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Old 12-19-2005, 10:44 AM   #1
bjj
Senior Member
 
Join Date: Oct 2005
Posts: 36
Different results clarified

Quick recap - I had an HER2 test done in Feb by the Royal Marsden Hospital, London. It was negative, I was unaware of it at the time. I pressed my local oncologist to do a test in October which she reluctantly agreed to and it came back positive. She said she could not recommend Hercpetin in my case. I contacted the Royal Marsden for a second opinion and that is when I found out that a test had been done in Feb and was negative. After a lot of going backwards and forwards the Marsden have repeated the test and come back today with the result that it is negative.

I now have 3 tests results, one positive and two negative. I know I should be relieved that I am probably negative - but I still wonder in the back of my mind which of the results are right.

The Royal Marsden intially just did IHC test and it came back IHC1+

My local oncologist did IHC test and it came back 3+

The Royal Marsden have now done Fish test and it has come back negative.

Can I really believe this negative result?

I feel guilty too - so many people know they are positive and are dealing with it and I an whingeing on as even though I have negative results I am not happy. I should be breaking out the champagne - having believed and accepted that I was positive since October it is hard for me to get it straight in my head that I am negative - or am I??!!

Thanks

bjj
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