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Old 12-14-2005, 10:05 AM   #1
tammymarie1971
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Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
Ok I need advice

Hi...I received bone scan results yesterday...the report said significant progression...I know have a spot on my sternum and my left hip..these are new...I still have spots on the spine however the onc said that the bone scan can't show if these are healed spots or active spots...so he sent me for an x-ray... I knew something was up as the pain has increased and tumor markers were climbing. My onc said he is not overly concerned he didn't even tell me about the new spots or that the report said that my hip lesion puts me at an increased risk for fracture! I had the nurse show me the report!! I'm a little bummed that after 8 treatments of herceptin/zometa there wasn't better results! The previous scan was done in May'05. I asked about navelbine but the onc said he's not ready to give it yet..He said zometa sometimes takes while to do it's job..

Does anyone else have similar experiences? My tumor marker was down a bit this time from 72 to 66. I did do the z-pack that Gina suggested..I'm wondering if I should do it again??
I also have Mexico still in my thoughts..The Doctor there has the approach of treating the compromised immune system and getting the system super healthy. I asked my onc about it and he said I could go and it wouldn't interfere with things here..The Doctor in Mexico (who my Faither-in-law sees) says to keep going with the treatments here. I really think I don't have anything to lose at this point. Gina had said no hydrogen peroxide therapy I'm not sure why?? I would also have extensive chelation therapy in Mexico. Which flushes all toxins and heavy metals from the system..I don't know>>> Any words of wisdom??? I sure could use them now.
Thanks all,

So I am wondering do I ask for Navelbine to be added to my herceptin or do I check out clinical trials for stem cell transplant at City of Hope or do I bite the bullet and try the therapies offered in Mexico...I could really use some advice!!
Tammy
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Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.

Last edited by tammymarie1971; 12-15-2005 at 10:14 PM..
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