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Old 11-16-2005, 11:09 PM   #1
jessica
Senior Member
 
Join Date: Sep 2005
Location: Atlanta
Posts: 87
Ugh!Not again...Spot's back!

...same spot...same stinky, stubborn spot that popped up in 9/04 after NED for a full year. Same spot that went away after 4 weeks of TH, only to return 8 weeks later. Same spot that resisted RFA last January and 3 cycles of Abraxane/Herceptin.
We finally nailed it w/8 weeks of TCH & then NED again-YEAH. And, we did another 8 weeks of TH, just to be sure. I've been off chemo again since 9/14/05. Just starting to grow hair, almost looks like a hairstyle and was trying to find the best way to manage that all-over-arthritis from the q3week Herceptin.
Unfortunately, I had a CT/PET this a.m. & my onc called me w/the verbal report this afternoon. The Good news is nothing new-not in the liver, lungs or bone, etc. Thank God!The not so good news is the Spot is back. And now they definitley want to do surgery.
We've talked about surgery as an option previously, so I already know what I'm in for. It's extremely invasive, 1 week in the hospital & since this spot lies right between two major vessels in my liver, and specifically very close to the main portal vein, the surgeon says in order to get clean margins he will have to cut a portion of the vein out and then reconstruct in!
I'm so disappointed & bummed out, however I do feel fortunate that I am a candidate for surgery-I've been NED since 9/03 after a year of fighting "innumerable, immeasureable" spots in my liver. But we did get to NED!
Then this spot popped up.
I guess I'm going to have to have the surgery...I don't want to be on chemo forever. I am going to be doing some pretty aggressive research for a less invasive procedure-like HIFU.
Anyone have any suggestions?
Keep the Faith,
Jessica
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