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Old 11-04-2005, 07:18 PM   #9
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Please Advise?

Hi to Everyone,
I am a new member - I would greatly appreciate advise from all -
I have been fighting over treatment decisions with onc. -
I live 18 miles from NYC - have been to three top oncs.
All have said the same and I am not convinced that my treatment is correct.
Found this site and was thrilled to learn about all of you.
Here it goes.
Was dx in April - 6MM tumor, her2 +++ er/p - was ductal invasive,
had lumpectomy - lymph nodes were neg. had 26 treatment of radiation
and 6 boosters. I am now on Arimidex.
The dr. say that since the size of the tumor was 6MM there is no need for chemo - and they would not recommend herceptin. Also NONE of them would
acknowledge the oncoytpe test at all - it is not gold seal yet. They
all said even if the test came back high they would not change my treatment.
It appears that the tumor size is the main decision and not the type of
cancer - I am so exhausted from the battle - I am seeing another onc.
12/6. I feel as if I am wasting time just dealing with the onc in regards
to treatment. It is all a mystery - the oncs are concerned to offer herceptin to stage I patients with small tumors node neg. I am terrified
of the cancer returning and I am having a difficult time to understand
why the system is concerned with tumor size and not the type of
cancer. All of the three oncs were greatly concerned about introducing
a risk of heart problems. I am more terrified of the cancer.
Please give some advise!!!!!

Thank you,
Jean
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