xeloda - my experience so far

[Pam P]

I usually post when I'm panicking, so I thought for a change I'd post when things are going okay.

I've been on xeloda now since 8/05. I started out with 3500 mg/day. HAd it reduced to 3000 mg/day because of diarrhea. At this dose I'm feeling great, side effects are minimal & mild. All by cbc counts are staying normal. My ca2729 has gone from 149 in 7/05 to 51 at last lab. I feel like I could stay on this forever at this rate.

I see on some recent posts that xeloda only worked for some for a short period of time. I'm wondering if some have had success with it for long lengths of time?

I have not had NED yet, and am afraid to hope that I could with this, but it would be such a gift.

Pam

6/01 - dx with IBC; er+pr- her2+++
6/01 - mastectomy; stage 111b; 12 positive lymph nodes removed
7/01 - 12/01 - 4 treatments AC & cytoxin; 4 treatments taxol
12/02 - radiation - 30 treatments
12/02 - tamoxifen
9/02 -- bone mets dx in rib
9/02-12/02 - femara
1/03-6/03 - taxotere & herceptin & zometa
summer of 03 - pleural effusions 4 times - side effect of taxotere
7/03-12/03 - faslodex & herceptin & zometa
1/04 - 1/05 - navelbine & herceptin & zometa
1/05 - 7/05 - herceptin & zometa
8/05 - --- xeloda & herceptin & zometa