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Old 10-21-2005, 05:40 PM   #1
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
just a fear-based question

Hi everyone, I've been crazy, crazy busy lately with work and teaching and kids. I'm so happy to see some good results for people have been shared. Congrats to all of you with good news and more reason to celebrate.

And thank you, Gina, for your very honest and understanding response to my post about single-motherhood and stage IV-ness. I'm with ya sister!

My dumb question is this. Is it really possible to have this diagnosis (her-2, stage IV, blah, blah, blah) and never end up with brain mets? I've developed such fear about this that I'm afraid I'm not helping myself in any way lately. i do get the regular MRI's and all, but the fact is i don't want any more involvement-I know you are all surprised.

Are there long term, stage IV bc survivors who have not developed brain mets?

I know I've asked this before, but it has been awhile and I need a boost. I want to let go of this fear. i also want to share that the women with brain mets are so very inspirational and definitely the most couragous people i have ever known.

Help.



__________________
with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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