Navelbine hurts

[Nancy Love]

Hello again dear freinds,
I am just getting ready for Navelbine #2 and I havent
recovered from Navelbine #1..severe jaw pain, its awful.
It wont let up. Im on Darvocet now and Im not one to take
pain meds. If the pain goes down a bit while Im taking the
med, it returns in 4 hours just as bad. My onc says 2% of
people on Navelbine get this rare side effect. I also have
other joint pain that "ping pongs " around, tonite in my
sternum, so bad it made me think my herceptin was
affecting my heart. I had an EKG and it was normal.
Thank you for listening to me whine again, i just dont know
what to do, it is unrelenting. I cant imagine 6 months of
this...im due for weekly Navelbine and Herceptin. I do
tolerate the Herceptin.
nancy Love