Is anybody here stage IV & not taking Herceptin?

If so could you please let me know why.

I am in the U.K. and am HER2+, I had bone mets diagnosed in Feb 04 but seem to be okay at the moment.

My onc. has said that I am entitled to Herceptin but he doesn't want to give it to me until if and when I have another recurrence.

I spoke to a nurse at CancerBacup yesterday and was told that Herceptin isn't usually given until mets to the vital organs are involved.

I'm not really sure what to do and would appreciate any comments.

Thanks,

Love Ally xx