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Old 09-10-2005, 04:02 AM   #1
Lyn
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Hi all, I saw my onc and it seems my new breast cancer is different to my original, I have a new primary in my remaining breast, this time seems not as agressive and only HER1+ to 2+, I have always been HER3+, is this better or worse? Perhaps the Herceptin has mutated the cells and slowed it up, does this mean I am cured on the other side, so many questions and my onc says Abraxen not available in Australia yet and probably not for another 5 years, what is wrong with this country, do they think we are not the same human beings as everyone else, I have today composed and sent a 10 page fax to our state member of parliament, you have probably heard of John Australia, the prime minister of Australia, I have it on good authority that because his wife had Breast Cancer, Herceptin got fast tracked and was made available to the public, only hope she needs Abraxen in a hurry. All of my dosing with Taxanes was in vein because the drug I was taking for nerve ending damage all this while impairs Taxanes, I still got all the neuropothy but did not suffer low blood counts. I am having my herceptin on Tuesday and my onc is going over the other info I gave him, apparently I can have Gemza so I want it with Methotrexate and either Xeloda or 5FU. I can't even find out what size cancer we are dealing with, the severe radiation I had obscures everything, my onc says that my BC is just smouldering, my CA-15.3 is still 15 the same as previously tested. He also said that no one wants to do anything about my shoulder problem becasue I have the big C, so I asked does that mean I have to get a private orthopaedic specialist, he said no we will just sort my chemo out first, apparently have to have increasing doses of methotrexate, I had it in the beginning after AC and Rads, C.M.F by trying with other chemo may have better results. Well until Tuesday I still don't know where I am headed, I have had a few rough days home here with my family, being in limbo is a reality check regarding survival, so hopefully more positive post next week.


Love & Hugs Lyn.
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