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Eccles wrote:
"I did not devastate my body with other treatments following bilateral mastectomy so I have had good quality of life between original dx of HER2 neu BC - July 2003). Seven months into Dexamethasone (4mg/day) I am in a wheelchair which makes life easier. It is only recently that the cancer has spread to the bones and obviously the longer I survive the tumour, the more opportunity there is to experience other 'outcroppings' "
I know you have posted from time to time, but I do not have a good "fix" on your story. First of all I am curious if your first met was to your brain? And were you able to have ANY treatment for it besides an operation?
Secondly, I am wondering if you have simply decided that you do not want any intervention even if it is available and would give you a chance to live longer?
As for 7 months on Dex, that is quite debilitating even at a lower dose. I took that drug earlier this year for my brain mets before and following Gamma Knife, and have as hard a recovery as if I had been on high doses chemo (which I have in the past).
Also, can you post a link to the brain sites that you have found helpful.
Thanks a lot!
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