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Okay, it's scan time again...at least I want it to be scan time! Would love your opinion...
I've been on TCH for 6 weekly cycles & my anxiety level is sooo high I've asked my onc to do my PET scan now, instead of waiting the standard 8 cycles. I just don't think I can manage this level of anxiety for another 2 weeks, not to mention, I'm sick of feeling crappy. I'm ready to find out if I'm NED again & if not & God forbid, & there's progression, we've got to find another tx combo.
A little back-story on me...I was dx'd 3 yrs ago-Stage IV at primary dx. Tx for 49 weeks the first year, NED for 1 yr, but then a single spot recurrence in my liver last Sept-a very stubborn spot. 4 weeks of TH til NED, but it came back 8 weeks later.We RFA'd the majority of it, but the edge of the lesion is close to a major vein & that bit couldn't be ablated. So it's actually a SLIVER of the lesion that wasn't ablated that we're wrestling with.
To make matters a bit more complicated, I did do 3 cycles (over 9 weeks) of Abraxane/Herceptin, but on the 3rd cycle discovered they were dosing me incorrectly-disproportionate (not enough) Abraxane to Herceptin. As a result, there was little response- only a slight decrease in metabolic activity but also a new questionable lung nodule popped up.
So that brings us to these past 6 weeks of TCH... I'm ready to find out what's going on & my doc is trying to talk me into waiting to give the chemo "time to work"...It's a sliver of a 3 cm spot!!! Shouldn't 6 weeks be sufficient time to see response?
I'm anxious & freaked out & I just want to know NOW!! I can barely handle the thought of getting another scan report that says these past 6 treatments have been ineffective too...I feel like I'm being a "problem patient" asking them to do this scan 2 weeks earlier thantheir standard.
In many ways, dealing with all this stuff has gotten harder in 3 years not easier. I just know there isn't enough xanax to sustain me for 2 more weeks!
Would love your feed back...
Prayers, Faith & Courage!
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