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Hi,
I have been on some kind chemo since 2000 October but have not yet achieved stable disease. This nasty thing seems to be one up on all the drugs and my condition is deteriorating. I am on Gemzaar-cisplatina and herceptin combo 2wks on and one week off. The week I am off my markers shoot up and comes down a bit after the 2 weeks of treatment. After 16 wks on this drug I am really tired and today I decided not to take treatment as I was too tired.I was asking the onco as to why does the dastard thing not respond to treatment so that I can be off chemo for a couple of mths. He told me that I am not an exception and that many Her2 neu patients are going thru the same thing and I should see the positive side of things that I have survived 5yrs with an aggressive form of cancer. I have heard from a lot of people on this board that they seem to have got some respite or the other from chemo. I would like to hear from people who have have been battling this with long term chemo and how you all manage to cope. I need some inspiration from people who have been at this for a long time.
I feel that if I take a couple of mths break this nasty thing will get out of control and if i continue taking chemo the quality of life is very poor. How does one make this decesion. Pl help with your opinions. I go for my scans next week to see whats causing the markers to rise. Pl pray for me. Thank you
Ragini
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