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I had gamma knife for single brain met in early January. I also have edema. I have never gotten better. Horrific headaches and pressure still. However, I notice when the day after I take Herceptin, my headaches get worse. Have any of you with brain mets/Gamma Knife experpienced this? No one seems to know. Also, I have spoken to 3 radiation oncologist. They all tell me since I have edema, my syptoms will get worse before they get better, because the DNA is changing and the tumor is dying. Nothing to do with Herceptin. It has been 2 months since Gamma.They will do a brain MRI again in a month after 3 months since Gamma to see results. Those of you with brain mets and edema experience this? All they can do is put me on pain pills or decadron, which the neurosurgeon and I don't want to get because of the bad side effects it caused me. I pray that some of you will be able to help me with my questions. God bless you.
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