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Old 12-28-2004, 04:55 PM   #1
Susan M
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Hi all, I hope some are having a much better holiday, it's been a bit
rough here. I could use a little help with research.
I haven't posted in awhile.

I'm set to go back on chemo JAN 4TH.
originally dx March 2002
Her2 +++, ER neg, PR neg. 4.5 cm tumor
normal CA27-29, but suspect tiny nodules in lungs, clean bone scan
neoadjuvant Adriamycin and Taxotere four rounds, 50-75 % shrinkage, lungs cleared.
Lumpectomy Aug 2002. SNB negative nine nodes, may have been micromets reversed by chemo, also clean margins.
Four more rounds of Taxotere combined with 34 rads late 2002
Feb -July 2003 Herceptin.
Stopped Herceptin due to highly reactivated Epstein Barr Virus
and chronic infection history
August 2004 tiny nodules in lungs reappeared
Nov 2004 nodules doubled in size, CA27-29 46
Late Nov lung biopsy surgery confirmed mets
Recovering from surgery
total of 12 days in hospital this month, 5 for surgery, 7 for asthma

OK my onco is talking about Taxotere with Herceptin, or possibly
Gemzar or Navelbine, can anyone direct me to good research info?
Any questions I should be asking?
Should have known this would happen, I threw out the wigs.

The good news, I'm still here and if you knew my history of almost
20 years of chronic serious infections, misdiagnosed for years, torn up immune system, I must have an angel somewhere.

Peace and prayers,

Susan M
Southeast PA
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