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Shannon:
I am Stage IIB and I am receiving Herceptin off label and my insurance is paying. I bugged my oncologist until he requested authorization from my insurance. If my insurance had not paid, my oncologist had worked it out with the Herceptin Drug rep to provide the drug free and I would pay the infusion costs. I truly believe that we have to be strong advocates for ourselfs. I would like to get a second year of Herceptin (there is a trial with 3 arms going on outside of the USA with 1) no herceptin, 2) one year of herceptin and 3) two years of herceptin. The trial is just starting so you and I will not have the results in time but the existance of the trial gives me ammo to use in my discussions with my oncologist next Summer when my 52 weeks are completed.
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