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I had the pleasure of talking to a couple of ladies at the SABCS, who were IBC with skin mets with no organ or bone involvement. I was excited to meet these people so I can net work with them. They were 6 and 8 years out from Dx. and doing well. Yes, they were recurring with skin mets and were in and out of treatment. That was encouraging for me (so far my organs and bones are clear unless something show this week on my follow up scans) and I wanted to share this with those of you who are IBC, Inflammatory not IDC invasive ductal. I am hoping to keep in touch with these folks and keep you updated. I will try to connect them with Joe so he can do a link with them on this support for IBC. They may join us on this board. With the Holidays we are all so busy so don't expect much until first of the year. Smiles, Sandy
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