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I've been treated for brain mets with wbr and continue to have lesions after 6 months. Most have shrunk but the largest at 2.4 cm continues to have fluid around it, along with some fluid in my cerebellum. I've been on 2-4 mg of decadron since Oct., but cannot seem to get rid of the edema. In addition I'm on Navelbine for mets to the sternum and am having lots of headaches, hand and feet tingling and some nausea. All these side effects just started after about 5 sessions, that is 5 sets of 3 weekly treatments with a week between each 3.
The dr is now talking about a spinal tap because of the cont. edema and the constant headach. Has anyone else had any of these problems. I see a specialist in 2 weeks at MDAnderson, but am craving more information than I'm able to get from my local dr.
Thanks,
Julie
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