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Dear Friends,
After being NED for 9 months (this time) and on Herceptin only, my blood counts are lower than ever. Hgb 7.1, Hct 23.0, Rbc 3.39. I went to the clinic for Herceptin Friday and my onc wanted to send me to the hospital for a transfusion instead. I was visibly shaken so he let me post-pone it. My counts have never been this low. Even during all my different chemo combos-AC, Taxol/Herceptin, and Navelbine/Herceptin. The low counts explain a lot- I haven't really felt that great since Christmas-super tired, short of breath when I go upstairs, severe "charlie horses." I kept telling myself that of course I am tired, I have been fighting this @#$%^& disease for 6 years. But I guess at 38 years old I still shouldn't be getting short of breath going from my living room to my upstairs bedroom. I am really scared about the transfusion. I am probably being silly. After all we have been through why am I so scared? The doctor says first we need to get me transfused, I guess I can't aford to let my counts go any lower. And then we need to find out why they have dropped when I am not even on chemo. One possibility is that we have done permenant damage to my bone marrow. Has any one else experienced this? How low has your counts gone? Should I be so afraid of the transfusion?
Thanks,
Jerri
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