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Hi
Have you read my story? Also, our Her2 website has information on metastatic brain tumors.
I was Dx w/ stage 4 BC in 1999. Iwas also her2+. Iwas gien a form of stereotactic radiation and followed-up with Whole Brain RADs(WBR). Although it is a fatiguing therapy it effective over tine. It can last for up to 6 mos or a yr. But is will need you to maintain good appetite to overcome the tireing effects of radiation. I had a total of 4000 gy over 20 days, with weekens off. My tumors were ranging in size from 3mm to 2.2cm. I had a total of 8 mets. SINCE 2000, I have been w/o tumors only dead scar tissue that has remained slowly diappearing. I have had short term memory and some vision problems (retenopathy), it hasn't been limiting me too much, but I cannot drive or see well at night. Initially you may have dryness in your ears, and eyes, but make sure the techs do not radiate near your visual field. I have never needed a craniotomy, because of the tumor sizes. I understood from the Rad Onc that a tumor should be sugically removed at 3cm+ if possible. I congratulate you , I feel you are getting the proper protocol. As time goes by, you should be monitored by MRI surveillance every 3- 6 mos to make sure you remain stable. I have done well, and know that if in the future another brain tumor occurs; it can be irradicated with GAMMA-KNIFE OR CYBER-KNIFE, BOTH RELATIVLY SHORT targeted procedures and not hamful to the brain. Hope you are continuing in good health.
Anytime you need to email me , please do.
HUGS AND WELL WISHES are being sent your way.
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