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Old 03-22-2004, 12:04 AM   #1
Elisabeth from Ontario
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Greetings Ladies, I was informed of this site by Chandi- thankyou!
My story: AT age 39: Oct/01 Left modified radical, right simple (by choice), 16/17 nodes pos, ER/PR weakly pos, her2 pos, tiny tumour also found in right breast (thank the Lord for giving me the notion to have bilat mastectomy). 6 mos of CEF, 5 weeks rads, tamoxifen. Dec/02 liver mets- herceptin until Sept03- added navelbine for increase in liver mets- turfed it after 3 rounds for poor QOL. Took a break to go to Florida with my family. My sister was diagnosed with a seriously aggressive brain tumour and had surgery just after we got home so I took Christmas off to cope with my sisters diagnosis. CT in Jan04- lung mets now an issue- they were in the background for a number of months but I was asymptomatic so we didn't worry about it. Started weekly taxotere/herceptin.
I have had 2 cycles of this with marked improvement on my chest xray in just 2 doses- Praise God! The 3rd leg of my last cycle was deferred because of 6 mouth sores- OUCH and my neuts were right at cut off point. So I Just had herceptin on friday and again next friday.
My oncologist is the best!!! Most visits I am greeted with a hug- that's the best part of my treatment day! He has worked with me to acheive my goals and basically I am in the drivers seat and he gives me direction.
I also participate in WebMD message board for BCmets. There is also another interesting place and that is bcmets.org there is a breast cancer advocate- Musa Mayer who has had BC herself (no mets) but is VERY knowledgeable. I have heard her speak at a 'LIfe after BC" conference in Hamilton ON, she has also published 2 books. Great reading and very informative.
My key to my survival: my relationship with my Heavenly Father, most days it is His footprints in the sand that I see. My Hope lies with my God rather than the hands of man.
Blessings to all of you this day!
Elisabeth
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