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Hi Guys, wellI saw my Onc today, and he had all my faxes from the info I got from you girls plus a bit more, and he just had to agree, Carboplatin with Herceptin, he said that with the Cisplatin I may loose my hair, so we are going the other way first. I had a chuckle to myself when he dictated a letter to my doc, he told her that I had come up with a combination that was not yet approved in Australia but he agreed that it was a good thing, so there ladies it is getting pretty sad when we have to look for our cures, and that is what this Forum is about. I start on the 29th April because I had my triple herceptin today and the carboplatin will be added every 3 weeks, an hour longer in the chair but it is only for one day a month I can live with that. He wants to use me as a study, I said why not the reconstruction surgeons used me for an exhibit at the specialists exams last year and the orthopedics want to use me on the 15 May as an exhibit as I am a complicated case, no kidding I was supposed to be dead years ago, so his assistant said, the same one who didn't think I needed the MRI because nothing else could be done, I did tell my onc today that she was a lovely lady but she gave me the wrong answer, so I guess I won't be seeing her unless I want to, soon they will be making appointments to see me, but I am now entering my 7th year of continual treatment just keeping one day ahead at a time until the right combo comes along or we eradicate it all together. I was on another breast forum that I first heard of Herceptin and my onc hadn't considered it but everything fell into place and I was one of the best candidates, so here we have it, I also told him I wanted the Navelbine when I had it, another combo not recognised in Australia at the time, but did the job until I came across the Cisplatin and Carboplatin on this site, so stayed tuned for my next installment. I wasn't too worried that I have to wait until the 29th April because I have been trying to get to the bottom of this lump for nearly 12 months, and my CA15-3 tumour marker today was 11, so I still don't know how I am supposed to monitor this devil apart from my inner voice and outer symptoms. Love, Hugs & prayers to you all.
Lyn
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