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Since coming on this site, I have read of several people who's cancer presented as Paget's disease. I thought that it was relatively rare, at only 1-2% of diagnosed bc patients.
Now I am wondering if it appears more often in HER2+ patients. I also presented with pagets disease.
The only reason I found out about it was due to an email that chain-emailed around the world describing the symptoms. It probably saved my life as I had neither breast lumps nor a positive mastectomy scan. Even my breast specialist thought it unlikely that I had pagets (however biopsy proved her wrong).
Who else here presented with pagets?
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