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Now that my wife has been diagnosed with mets to lungs and liver, I'm not sure what our best course should be and I'm hoping your experiences and thoughts might help...
My wife loves her doc and I like him alot as well, but I want to make sure that we are doing all that we can. His group has formulated a course of action for her but happily they are waiting to hear back from a her2 specialist from Sloan. They are checking to see if there is anything else that they should be considering. I've asked him to look beyond Sloan as well. I love that they are conferring with Sloan but I still wonder if we'd be benefit at all from going direct. My feeling is that there are probably benefits of each. With her current practice, she feels truly cared about which is so very important to her. In a larger research facility, from what I hear, you don't always get that same personalized attention and sometimes the study becomes more important than the individual. As an example, the doc I had originally spoke with at Sloan never would have been willing to give her herceptin off-protocol like her current doc would have. Part of my concern as well, stems from the fact that he mentioned Taxol again as opposed to Taxotere which from all that I've read seems to be more active than Taxol. It seems that so much is being done at other facilities and I want to make sure that I do all that I can to protect Caryn.
I welcome any insight you might have on dr's, studies, treatments, etc. I have been very impressed with Andrea and Nora from The University of Washington and if either read this, I weklcome their thoughts.
If it helps, she went through dose dense (every 2 weeks vs the standard 3) AC (4 cycles) followed by dose dense Taxol followed by radiation and she was scheduled to start Herceptin and Zometa. The Herceptin has been delayed until the treatment plan is confirmed.
Thanks and love to all, Eric
Thanks in advance, Eric
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