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I always read the posts here although I don't often post myself. I have bone mets, discovered at first diagnosis in April 2003. Although I am keeping really well, I came back from the hospital yesterday just totally fed up. The doctor (who is really nice) just seemed really short on hope. My markers have been coming down for the past couple of months (I am on Arimidex and Herceptin) and I was very pleased about this, he told me that the last drop in marker levels was not as much as the previous drop and that they would probably rise again in the Autumn. I have to admit that it is my fault for asking him how long I might be stable on this treatment for. But I feel so unhappy, I was kind of hoping for a longer effect. The uncertainty is a killer isn't it, my sisters? I don't know where I go next if this treatment does stop working, also it may well go on longer -he doesn't know, being "just a doctor" as my husband always says. What next. Sorry for all the rambling - just felt the need to put it all down and ask if anyone else is in a similar position or feeling the same or if anyone else wants a similar whinge or even to share a story of hope. I am
er+
Her2+
38 yrs old
15/17 nodes positive
L/mastectomy
bone mets to spine discovered at diagnosis in April 2003
Having Arimidex and Herceptin
In the UK!!
Love and Healing to all of us
Caroline x
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