I had my every 3 week herceptin/projeta treatment today, but I always see the doctor first before treatment.
I asked these questions :
Why am I stage IV and not stage 111C:
1. Tumor size on Supraclavical node was over 2 CM - biopsy was her+++. ER 55% and on tamoxifen for around 2 years - so it was working.
2. Found reoccurance after all my treatment after 1 year without any treatment. Tch, radiation , And herceptin for a year.
3. 3 spots in my axillary nodes which were deep. Which I thought they took those out....I don't know if all those are called that under your arm or not. They took out 8 and 6 add cancer.
I asked other questions about vitamins I take and have for 8 months now. She said Omega 3 with fish oil, calcium with vitamin D, and multi vitamin she said would recommend to always take. The others only if it helps like glucosamine and pro biotics.
They can't do a cancer marker on me now because I never had one done in the beginning for a baseline so it would now be a random number.
They haven't done any bloodwork on me since August...I don't know if that's normal or not.
My Side effects are; bloody noses and occasional sores in my nose, sometimes runny eyes and nose, diarrhea or now constipation if I have a BM which before I went everyday but now I can go 3 days.....and a constant my feet and hands hurt quite a bit and it seems both are always cold and that's the worst side effect.
And I asked if I could do infusions 6 times in 12 months and she said only if I can go several years with stable or Ned which mean the same she said.
Just wondering anyone else's thoughts on all of this.
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