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Follow up care after chemo complete/ scans
Hello ladies,
Questions... I will be having my last chemo tx on May 6th, then the mastectomy,
Rads and 1 year herceptin . Ct scan in May before surgery. In discussing my follow up care with oncologist (pending results of path report after surgery) she said my next scan will be yearly and that she doesn't do blood checks for tumor markers. She does basic labs CBC, bmp. So unless I become symptomatic no follow labs or scans.( will still see her once every 3 weeks for herceptin).Her reasoning is that with the ct scans she doesn't want to introduce any unnecessary radiation into my body as it will put me at higher risk of other cancers . As for the labs ,she doesn't do tumor markers as in my words that I can understand they don't always tell the whole story and everyone is different plus does not want undue stress on patient. With having ibc plus her2 neu I truly am concerned about the waiting periods between scans, and yet I don't want to risk developing other cancer . Advice please. And I am sure my oncologist will do a compromise with me to make sure I am comfortable with my tx.
Hope this all makes sense... Chemo brain today at its best
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]11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
11/19/21- 8 years today I officially remain NED and in 12 days I will be having a lymphnode transfer to help decrease some mild lymphedema! Still working, living life and soon to see a day I thought never would happen and that’s becoming a grandparent June 22nd.
11/19/2023 - 10 years since diagnosis and I remain NED
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