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Old 09-11-2013, 06:12 AM   #1
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,747
this might seem silly...

In light of the pain, suffering, heartache etc.that we go through on our unplanned journey through life with breast cancer...my questions this morning may seem trivial. BC (before cancer) I was a physically strong woman. Yoga, biking, hiking...During treatment I feel like I lost most, if not all, of my "core"strength.
I have studied the side effects of arimidex...and believe me, I had plenty!
Now for my questions! It has been 3+ years since I swallowed that last tiny white pill. I have no stamina. I still have pretty significant muscle weakness. I exercise daily, eat well (vegan), take a few supplements. I have 25 pounds (gained during treatment) that will not go away. To look at me one one might think...so what's the big deal? Well...mentally I feel that my lack of physical strength is still making me feel "sick". Does this make sense? All of my doctors poo-poo this and say things like..."oh, you are in great shape for a woman your age" (63). Blah blah.
Some days I still feel like cancer still somehow manages to get the best of me. I should feel more gratitude...
Even on sunny days I am still so ANGRY!
Thank you all for being here! Thank you Joe and Christine ( :-) ) for creating this amazing forum.
Phew...I feel better now!!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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