Brain MRI - Should I demand one??
First doctor and first path: Tumor, Grade 2, Her2+++, PR-, ER 30% - that was based on a Core biopsy results. Double masectomy scheduled the following week.
Second opinion doctor - based on the results about. He wanted Chemo then Masectomy.
I had the weekend to decide which path (no pund intended - LOL) to take.
I went with 2nd opinion and family was split. Some said get my breasts off immediately, and others said do chemo and be the human lab to see if it kills the cancer.
I went with TCH chemo first, but before I did these are the scans I received.
Breast MRI, Bone scan, and Cat Scan and everything came back clear accept the Breast MRI of course which first doctor hadn't done and second doctor said that is standard procedure.
After I had the masectomy the path report changed; Grade 3, ER +73% (big difference), PR 2% positive and HER+++, 6 of 8 lymph nodes with extracapsalur present and he said .5 margins meaning clear margins in masectomy?? I think. He said the Chemo was good response because tumors didn't grow and based on tests prior had shrunk some maybe.
So first off with all the scans I had no idea to even think of a Brain MRI until this board because I didn't know that herceptin didn't pass the blood brain barrier.
Now, I wonder if I should PUSH FOR BRAIN MRI because I haven't done one??
They scan everything else prior?? I am not to have any scans now until I would have symptoms of spread which hopefully that won't happen. But they never scanned my brain.
Also, based on my path reports do others on this board think I had good results??? On chemo vs. Masectomy first???
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myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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