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Mri of spine shows a syrinx?
I am getting IT Herceptin for spinal cord mets, has anyone ever heard of a syrinx, or known anybody with this. This is located above and below the lower lesion in the thoracic spine.
So does this mean the It Herceptin is not getting to the area?
Google is kinda of scary, especially since some of my pain and altered neuro symptoms fit. I am need of prayers, I had one of those days yesterday, that when I got my mri results back, after goggling, faxing reports, and hurry and wait for the cd and films to be delivered to Neurosurgeon and for him to review, which means probably will not hear from him till next week.
So after a disagreement with my wonderful spouse over a past issue with my family. , I basically cried myself to sleep, praying that I wake up able to move. The risks of me being paralyzed from bra line down are pretty high.
well my 3 year old Labrador made sure of that at about 430am this morning, because she wanted out and was hungry. Oh by the way my hubby went on his planned overnight fishing trip with his dad, brother. He usually takes care of dogs before work. i think escapism is his way of dealing with the medical changes after all these years. Very supportive at home , but avoids the Dr. Offices even for himself like the plague. I did get to see the sun come up, and have time to post and check a few posts. sorry for the morning rant of frustration.
Time for God time, shower, then wake up a grumpy 13 yr old for school, who was up making messes in the kitchen after midnight.GRRRR. I hope he is happy today. then go get cd's of Mri, then go get treatment. Thank you all for listening
Prayers and Gratitude to this Board and all of its members past and present whose thought and journeys are all captured here for those of us to seek out and find our place, find caring, understanding, clinically based answers.
Darita
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dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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