Oldie with new Name

[tammymarie1971]

Hi ladies,.
I have been coming to this site for years as my journey has moved along. Have not posted in forever. Anyway I was dx'd at 30 while expecting #4. 5cm tumor no lymphs, did mast. A/C, then tamox. for about a year. This was 2001-2002. Early 2004 liver met. Did herceptin and taxol with resection followed by herceptin and taxol 3 more rounds, 6 mos later spots found in spine, but liver looked good. Changed oncs started zometa and herceptin, this is 2005, did well more hormonals, vinorelbine, Xeloda, little ups and downs, but mostly good QOL! Fast forward 2 years Christmas '10..another liver met. Cisplatin and gemzar no luck, keep on with herceptin, try tykerb and xeloda..Things go up and down for a while...Liver function starts going wacky..tumor is sitting on or around bile duct, stint gets put in, but the pain and jaundice don't get better...enzymes through the roof, need blood for the first time ever things just get worse...bili is sky high and ammonia sets in, they try to see if anymore stints could help but apparently liver is squeezed shut...lactralous given to reduce ammonia.. bili is coming down and finally got first round of tdm...still sick during this time last week spent in hospital keeping close eye on levels etc...I was told not much more to be done...ok, however I've only had one tdm and I'm not ready!!! I hope this stuff is making sense to you guys..I'm using this crazy laptop that's cursor keeps jumping..Anyway gastro dr is giving steroids to see what is inflammation in the liver and what is actually tumor...I guess I just need to hear your thoughts..I've mentioned trying any type of gamma or rads to reduce burden but not getting too clear an answer...I would just love to glean from you lwisdom on how to get liver any healthier just to stay in this race..Can you at all help? I will try to get my profile set up a bit to make me more user friendly..thanks..Tammy