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Old 11-30-2012, 07:14 PM   #1
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Question Keep existing treatment or get a second opinion?

Hello everyone, I was wondering if you could help me with my decision for getting a second opinion. Right now I am on herceptin only, with tamoxifen. I had radiosurgery for a brain met. I know that many of you are on lapatinib as well. My doctor is holding off with that drug until she sees progression. Right now, the brain met has shrunk with no new lesions and herceptin seems to be working. She wants to keep me on herceptin, as long as my heart will take it. Once they take me off of herceptin, the government won't let me go back on. (I live in Canada)
I was looking in to the vaccine trial for her2 and asked my doc about it, but she seems to be against the idea, because right now, my treatment is working for me and why change anything. This makes sense to me, but it is coming from a doctor who said that statistically, I have so many years to live. (I didn't ask to know about statistics by the way). I love this doctor, but if the person who is choosing my treatment is someone who thinks I'm going to live only until a certain time, is she the right person for the job?
Thanks everyone. I guess I have some thinking to do. I feel better know that I have gotten this all out in writing.
Much love to you all and any advice would be appreciated.
Jill xoxo
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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