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When it rains it doesn't always pour- right?
Just got my tumor markers back for this month and they are up alot again- from 107 to now 129. Last week (prior to getting these numbers), my oncologist talked up pertuzumab and TDM1, probably being able to get on TDM1 more easily than pertuzumab. So I'm hoping that I can start on that soon- it goes without saying- that I really really really want to get to NED.
In other news (and this has me very worried), my husband has been having alot of strange symptoms- tingling in his fingers for a few weeks, some blurry vision in the AM, and a very stiff knee. He and now I are paranoid that it is MS. Two of his biological aunts have MS and I'm so afraid that is what is causing his symptoms. He has a doctor's appointment tomorrow (just a family care doc) so we can get a referral for a neurologist.
I just hope we are hypochondriacs!!!! Please chime in with TDM-1 successes and encounters with tingly fingers/MS.
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[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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