TDM1 breathing/fatigue question

[michka]

Hello to all. I have been hesitating to ask because I don't want to complain but I am the kind who needs to know what is going on in my body even if it doesn't change anything. Here is my question related to TDM1 side effects:
I had 3 treatments. At each treatment, starting at the end of week 1, I feel tired (not tired as I was with FEC or Taxol or other treatments, I mean exhausted), but worse I am very limited. I cannot take a shower or move around without being breathless and having pain in my thorax. The only way to prevent that is to stay in bed. It gets better the last days of the third week. I asked the onc who said they did not know what it was. The heart was checked and is OK. My blood counts are OK. They said the tumors in my lungs are small and would not generate that. They had just seen the scan and there was nothing else to report than the tumors in the lung area. I read on the list of possible side effects"dyspnea, pain in the thorax". Is that it? I did not see anybody really report this on our forum although I read fatigue and once pain in the thorax. Did this happen to you? Do you know where it comes from? Any advice?
I have so many things I feel like doing, start and have to abandon, even in the house.
Michka