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Petition to President Obama
You can sign online, pass the petition on to others, and print out the petition.
The National Breast Cancer Coalition is asking the President to publicly commit to Breast Cancer Deadline 2020.
http://www.breastcancerdeadline2020....-Petition.html
Deadline 2020 is a major grassroots movement by the NBCC to end breast cancer.
Also, the NBCC is responsible for setting up in 1992 the DoD's Breast Cancer Research Program which has been funded by congressional appropriations each year to a total of over $1 billion. Each year, Fran Visco, NBCC's president, testifies to Congress and asks for funding for this program -- for next year $150 million. Each year breast cancer advocates contact their congressional representatives to sign the letter. I do this every year. Fran Visco is a 24-year breast cancer survivor who was diagnosed at age 39 when her son was 14 months old. She is an attorney.
http://www.youtube.com/watch?v=OUIILlxDUXE
The DoD's BCRP was instrumental in the development of Herceptin, and the NBCC insisted during the early clinical trials that survivors who were HER2 negative be EXCLUDED from those trials, as originally they were supposed to be included, which made a major difference to the outcome. All research proposals submitted to the DoD's program are reviewed by scientists and at least two breast cancer advocates, which the NBCC insisted on when the program was set up.
This year's NBCC advocacy training summit and lobby day on Capitol Hill in DC last weekend. It was great to be with many sisters and brothers who are breast cancer survivors. 600 attendees. Almost all the states were represented.
http://www.youtube.com/watch?v=QQfEC...feature=relmfu
Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
Last edited by Joan M; 05-12-2012 at 07:17 AM..
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