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Old 03-26-2012, 12:03 PM   #1
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Can you have steroids in TDM1 trial?? need encouragement

The swollen bits in my body has been diagnosed as super vena cava obstruction..i.e nodes around the vein pressing on it.. not good to say the least..

they want to put me on high dose dexa for the time being and we are scanning at 9 am in the morning ..they actually wanted to keep me in but i refused because I was unprepared for my puppy.

Anyhow I hope this will not affect the starting date of the trial which in the long run could be the answer..

I cannot see any thing about being on steroids as an exclusion criteria about the theresa trial.. does any one know for sure??

I am trying to remain hopeful it will not delay things but hoping hoping
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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