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Feeedback please
Hello to all,
I have been trying to figure out why I am wheezing and have been since the middle of Dec. I told my onc. and we took a chest x-ray that came back clear. He told me to call primary care doctor. I did and she put me on Augmentin for 10 days. Actually, cleared up a sinsus infection that I had complained about, and was told to use Claritin. Wheezing continued.
I thought to myself, maybe it is my heart. Been on Herceptin for 24 months now and had not had an echo for 4 months. Had the echo and met with cardiologist. Echo great-64% but he thought wheezing sounded like asthma. Ok.. I spend time on internet and see that acid reflux and asthma seem to go hand in hand much of the time. Cardiologist refers me to pulmonary doctor who does breathing tests and says it "maybe" asthma, gives me an inhaler to use 2 times a day and one for before I go to the gym. Been using it for a week now, still wheezing.
I also saw a gastroenterologist and had and endoscopy done on Tues. and now waiting for biopsies to come back.
She gave me a prescription for a acid pump inhibitor and I just started that.
My annual brain MRI-that I insisted on- came back clear so that was very heartening.
So, now I guess I have to insist that I get a PET scan. Have not had one in 5 months am wondering why my onc. does not want to order one for me.
So, if anyone has any idea what may be going on, please let me know.
I feel like I am the only one driving this trying to find out why I am wheezing.
Frustrating to say the least.
Best wishes to all and please know you all give me strength and courage each and every day when I read your posts.
Emelie
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Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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