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Re: Update on the Journey for NED
Dear Sheila
I am sorry things aren't working right now. Consider returning to something that did in the past such as Taxol (or Taxotere) with Herceptin and Tykerb - will they do that combo or any combo with Herceptin and Tykerb together. Just thinking out loud on what can stabilize you until you can get TDM1 or a trial with something else.
You are one of the strongest women I have ever met and a true warrior. My thoughts and prayers are with you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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