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Re: Update on the Journey for NED
Sheila,
As always, so nice to see a post from you. Sorry to hear of continued challenges. UGH!!! Many of us know the frustration well.
It sounds as if your home is warm and cheery this holiday season. Sitting in front of the colorful lights is one of life's simple pleasures for sure. I hope you feel up to soaking up their magical glow.
I agree with the wise input from everyone on the board. More drugs in the pipeline!! More vaccines on the way. Then of course, there are our old friends that seem to help us out. I am on my 3rd run with a taxane and 2nd go around with my old friend Abraxane. Maybe another run with an old friend will tide you over until "Mr. P" becomes available.
Sending warm holiday wishes and I look forward to your inspiring posts in 2012.
Lori
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2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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